cbd disease prognosis

The symptoms typically become more severe over several years, although the speed at which they worsen varies.

Early symptoms

CBD typically affects one of the limbs at first. This is usually a hand or arm, but sometimes a leg.

Mid-stage symptoms

As CBD progresses, it may eventually start to cause problems in your other limbs.

There’s no single test for CBD. Instead, the diagnosis is based on the pattern of your symptoms. Your doctor will try to rule out other conditions that can cause similar symptoms, such as Parkinson’s disease or a stroke.

If you have CBD, your clinical team will pass information about you on to the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS).

The diagnosis must be made or confirmed by a consultant with expertise in CBD. This will usually be a neurologist (a specialist in conditions affecting the brain and nerves).

Diagnosing CBD

The symptoms of CBD get gradually worse over time. They are very variable and many people only have a few of them.

Difficulty swallowing can cause choking, or inhaling food or liquid into the airways. This can lead to pneumonia, which can be life-threatening.

Outlook

There is currently no treatment that has been shown to stop CBD getting gradually worse, although treatments can reduce many of the symptoms.

Tau occurs naturally in the brain and is usually broken down before it reaches high levels. In people with CBD, it isn’t broken down properly and forms harmful clumps in brain cells.

Speech and communication problems: slow and slurred speech.

Swallowing difficulties: eating, drinking, and swallowing become progressively more difficult and food may ‘go down the wrong way’. This can lead to chest infections or pneumonia.

Diagnosis

CBD has similarities with Progressive Supranuclear Palsy (PSP). Some people with CBD go on to develop PSP, and vice versa.

Cognitive and behavioural changes: thinking may become impaired, leading to memory problems and difficulty understanding and interpreting communication. It may also be difficult to carry out complex tasks that require planning ahead.

Causes

It is thought there may be some weak genetic link too but the risk of other family members developing CBD is very low.